Useful Resources

Taking care of YOU: Self-care for family caregivers - This fact sheet is produced by the Family Caregiver Alliance and is a good guide on ways to take care of yourself whilst you are caring for your loved one.

Assist Guide Information Services have produced some excellent checklists to help caregivers with various tasks. Below is a selection of the most useful ones:

  • Assessing your loved one's needs - "This checklist is intended to identify areas of concern that you may want to monitor more closely or gather more information about."
  • Tips for communicating with your loved one - "Unless your loved one is unable to express his or her wishes, all decisions about his or her care should be done together. This article lists suggestions for how to communicate effectively with your loved one about care and Quality of life."
  • Home care tasks checklist - "This checklist is to help identify the tasks required to be completed by a home care worker. For each question, answer if help is needed and indicate how often. This will help in determining who to hire to work in the home."
  • Emergency contact and medical form - "This checklist is an easy form to document all the important information that might be needed in case of an emergency. Complete this form by entering medical history and information and contact information. Make copies of the completed form and keep one next to each telephone in your home and other locations where they can be quickly accessed for handy reference."

How to communicate your loved one's symptoms during a crisis - "When your care recipient is in a medical crisis, your ability to observe symptoms carefully and report accurately might be, quite literally, life-saving. But that is also a time when it may be difficult to function clearly. Here is a list that will help you remember what to look for during a crisis. You may want to read it ahead of time, and then tuck a copy in your patient file for later reference." This article is produced by the National Family Caregivers Association.

How to communicate your loved one's symptoms regarding overall wellbeing, pain and more - This article is produced by the National Family Caregivers Association.

Tips to help caregivers manage their own fatigue - This article is produced by Cancer Symptoms.org

Caregiving Checklist - This article is produced by the American Brain Tumor Association.

Advice for caregivers - Learning to be strong and weak at the same time, written by Barbara Dunn JD. This article is produced by the American Brain Tumor Association.

"Wonderful ways to help caregivers" - A list of ways friends and family can help caregivers and Brain Tumour patients with everyday tasks. Written by www.tumorfree.com

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