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Welcome to BT Buddies

Founded in March 2009 Brain Tumour Buddies is a national charity committed to providing information and support to anyone affected by a high grade brain tumour in the UK.

Our website provides in-depth, accurate and up-to -date information on all aspects of dealing with a brain tumour and has been compiled from a wide range of sources. If you can't find the information you are looking for please contact us and we will do our best to help.

We also offer support to patients, carers, relatives and friends in a variety of ways including in our forum, via email and on our Facebook and Twitter pages.

BT Buddies is able to continue providing information and support thanks to kind donations and generous fundraisers. Funds raised for BT Buddies also go towards funding research into high grade brain tumours.

If you, or someone you know, is interested in fundraising for BT Buddies you can contact us at fundraising@btbuddies.org.uk or call 0845 459 4101. We will also be launching a new section on the BT Buddies website in the next couple of weeks which will include information on how you can raise funds for BT Buddies, resources to help with your fundraising and suggestions for events you can take part in. Watch this space!

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International Brain Tumour Alliance (IBTA) - 2009 "Walk" and "Week"

  • Monday, 02 March 2009 00:00

The 3rd annual Walk Around the World for Brain Tumours will be held between 1 January and 7 November 2009. People are encouraged to undertake sponsored or unsponsored walks to raise awareness about brain tumours and to donate the mileage covered to the World Walk target of circling the earth five times at the Equator (125,000 miles or 200,000 kms).

The IBTA does not wish to receive any funds raised by these walks or by other Brain Tumour awareness-raising activities. Funds raised should be donated to a local or national brain tumour support or research activity.

The 3rd International Brain Tumour Awareness Week will be held between Sunday 1 November - Saturday 7 November, 2009 and people are encouraged to organise an activity which will contribute to increased awareness about brain tumours. It could be a walk, a picnic, an information seminar, a scientific conference, or even the distribution of a media statement to local media which draws attention to the particular challenges of a brain tumour and the need for a special response and an increased research effort.

Organisations wishing to be listed as supporters of the IBTA's 2009 World Walk (1 January 2009- 7 November 2009) and the International Brain Tumour Awareness Week (1 November 2009 - 7 November 2009) should contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it or This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Please note: for your organisation or group to be a "supporter" of the Week and Walk, the IBTA requires no financial commitment or fee to be paid to us by you. All we are asking for is your enthusiasm in supporting and promoting these events and for allowing us to add your name to our list of supporters. For a list of our 2008 supporters, see our home page http://www.theibta.org


Kathy Oliver
Co-Director
International Brain Tumour Alliance - IBTA
www.theibta.org

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BT Buddies Launch Press Release

  • Sunday, 01 March 2009 00:00
  • Last Updated ( Sunday, 01 March 2009 00:57 )

BT Buddies Logo

 

1st March 2009 - The development of a comprehensive new online resource for people affected by high grade brain tumours has been brought about after the untimely death of the co-founders daughter.

‘Rose was a popular young woman with a bright future ahead of her when her symptoms started. She received excellent care and treatment from The Walton Centre, Liverpool and Clatterbridge Centre for Oncology on the Wirral but, sadly, it was all to no avail,' said her father Andrew McGill.

Rose McGill passed away aged 22 in 2006 from the highest grade of Brain Tumour. In Rose's memory, her father Andrew McGill along with the founder of Brain Tumour Buddies, Natalya Jagger, decided to develop Rose Buddies to raise funds and help with the emotional and information needs of families in a similar situation.

‘The original intention was to provide some awareness and fund-raising for brain tumours but I felt that a lot more was needed in terms of understanding what brain tumours are, how and where they are treated as well as many of the practical aspects of care and support that is available in the UK,' explains Natalya Jagger.

She continues: ‘Rose Buddies was set up in 2007 and we have raised over £10,000 to date. Now, this second phase, Brain Tumour Buddies - timed for 1st March to coincide with the beginning of national Brain Tumour Awareness Month - is launched as the UK's only website dedicated to providing information and support to high grade brain tumour patients, their families, friends and caregivers.

‘Information on the new website may give hope to others who find themselves trying to deal with the diagnosis of a high grade brain tumour and they can now find answers to their questions all in one place,' adds Natalya.

Doctor Helen Bulbeck, Director of Brainstrust, a UK brain tumour charity that helps people from the point of diagnosis, has seen the new web site and says, "Brain Tumour Buddies is quite the most informative website I have seen for patients who are afflicted with a high grade brain tumour. It's a beacon in the darkness."

For further information on BT Buddies, visit www.btbuddies.org.uk or contact Natalya Jagger on 05601 751226 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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1st March 2009 - Official Launch Date

  • Thursday, 26 February 2009 00:00
  • Last Updated ( Thursday, 26 February 2009 19:43 )

It's been a long time coming but BT Buddies is almost ready for it's official launch! After adding the last remaining articles and making sure the technical 'bits' are all working properly BT Buddies will be announced to the BT Community and various local and national press on 1st March 2009, the start of Brain Tumour awareness month.

My hopes for this website are that it brings information and support to people in the UK who are seeking help specifically on high grade brain tumours. 

Once launched I will continue to add information to the site and will keep all sections up to date so that people visiting BT Buddies will see the latest information there is.

If you have any comments or suggestions please don't hesitate to get in touch via the contact us form!

Your BT Buddy,

Natalya

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Joint initiative for funding feasibility studies in brain tumours

  • Wednesday, 25 February 2009 00:00
  • Last Updated ( Thursday, 26 February 2009 19:43 )

Samantha Dickson Brain Tumour Trust (SDBTT) and Cancer Research UK (CR-UK) are launching a joint clinical trials initiative for primary brain tumours. Recognising the further need for research into novel agents and therapies in this area, a call for feasibility study applications has been issued. Projects are available in the order of £25,000 per annum (up to a maximum of £40,000 in exceptional cases) for a period of up to 24 months.

Read more about the initiative here...

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Update: Cheryl B's story

  • Tuesday, 24 February 2009 00:00

Cheryl's story has been updated today with her latest news about her up and coming surgery. Read more about Cheryl and her brain tumour journey here...

Read more...

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