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Welcome to BT Buddies

Founded in March 2009 Brain Tumour Buddies is a national charity committed to providing information and support to anyone affected by a high grade brain tumour in the UK.

Our website provides in-depth, accurate and up-to -date information on all aspects of dealing with a brain tumour and has been compiled from a wide range of sources. If you can't find the information you are looking for please contact us and we will do our best to help.

We also offer support to patients, carers, relatives and friends in a variety of ways including in our forum, via email and on our Facebook and Twitter pages.

BT Buddies is able to continue providing information and support thanks to kind donations and generous fundraisers. Funds raised for BT Buddies also go towards funding research into high grade brain tumours.

If you, or someone you know, is interested in fundraising for BT Buddies you can contact us at fundraising@btbuddies.org.uk or call 0845 459 4101. We will also be launching a new section on the BT Buddies website in the next couple of weeks which will include information on how you can raise funds for BT Buddies, resources to help with your fundraising and suggestions for events you can take part in. Watch this space!

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MILES FOR HOPE TO BREAK WORLD RECORD FOR BRAIN TUMOR AWARENESS

  • Wednesday, 11 February 2009 00:00

Miles for Hope, a non-profit organization, dedicated to raising funds to find a cure for brain tumors, has partnered with the Dunedin Blue Jays and AirTran Airlines to bring you a Guinness World Record Breaking event "Together In Hope" candlelight vigil. All proceeds from this event will be used to expand existing brain Tumor vaccine trials and provide travel assistance to qualified patients enrolled in clinical trials. Read more about the world record attempt here...
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Temozolomide sales reach $1 billion

  • Friday, 06 February 2009 00:00

Sales of Temozolomide*, an anti- Cancer drug developed by Cancer Research UK scientists, have reached $1 billion**. The charity receives a percentage royalty on these sales, which it uses to invest in new research to beat cancer. Read more about this story here...
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World News

  • Monday, 02 February 2009 00:00
  • Last Updated ( Saturday, 07 February 2009 10:34 )

State-of-the-Art Therapy for Glioblastoma Multiforme

A report by

Henry S. Friedman, MD, James B. Powell, Jr. Professor of Neuro-Oncology

David A. Reardon, MD, Associate Professor of Pediatrics and Surgery

2/2/2009

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January world BT news round up...

  • Friday, 30 January 2009 00:00
  • Last Updated ( Friday, 30 January 2009 22:10 )

In future, news stories from around the world on brain tumours will be posted as and when they happen but just for January here is the months news...

January 12th 2009 - Gene therapy eliminates brain tumors through selective recruitment of immune cells (www.virtualtrials.com)

 

January 20th 2009 - Veteran US Senator Ted Kennedy is released from hospital after suffering a seizure at Barack Obama's inauguration lunch (BBC news)

 

January 21st 2009 - Seve Ballesteros describes his progress as "quite good" after his first course of chemotherapy following surgery on a brain tumour (BBC news)

 

January 22nd 2009 - NOVEL DEVICE SHOWN TO BENEFIT SURVIVAL FOR BRAIN CANCER PATIENTS WHEN COMBINED WITH CHEMOTHERAPY (www.virtualtrials.com)

 

January 27th 2009 - People with a particular gene variant may be more likely to develop brain tumors, and at an earlier age, than people without the gene, according to a study published in the January 27, 2009, print issue of Neurology®, the medical journal of the American Academy of Neurology (www.sciencedaily.com)

 

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New Fundraising Idea

  • Wednesday, 28 January 2009 00:00
  • Last Updated ( Wednesday, 28 January 2009 01:22 )

Over the past 2 years Andrew and I have done a lot of fundraising in Andrew's daughter, Rose's, memory. We hit our £10,000 target in November 2008 and have now set our sights on £15,000 by the end of 2009!

As part of this, yesterday we announced a new project we will be working to our friends in the photography community. Here is the post Andrew made about the idea...

"Many of you might know that today would have been my daughters 25th Birthday. Since her death just over 2 years ago myself and Natalya (Talj) have been involved in various fundraising activities.

This year we have decided to publish a photographic coffee table book and any profit from sales will be given to charity and this is where we would like to enlist the help of as many dpc'ers as possible.

In a nutshell we want people to go out during the month of March and take a photograph that might depict 'hope' in some way (I've seen peoples ideas of challenge titles so am expecting some shoehorned shots).

Langdon has agreed to allow the book to carry the dpc logo and we are discussing others ways DPC might help us. The book should be on sale from 1st November 2009.

If you'd like more info then either post away here or visit BTBuddies to read more about the how and why we are doing this. Please note the site talks about High Grade Brain Tumours so may upset some visitors. You can sign up either by pm from here to (Talj) or myself or via the contact us form on the website.

What will it cost you? well, the only thing I can think of is the time it takes you to go out and shoot the image and of course donating the image rather than selling it, the copyright remains with the photographer and we would just ask for permission to possibly use it in the book and/or on any publicity media we may use (a more detailed notice will be written prior to requesting any image)."

Now, this is where you come in! Along with these images I would like to share YOUR ideas of HOPE. Whether you are a patient, caregiver, family member or friend of someone with a Brain Tumour, all you would need to do is contact us with your thoughts on what hope is, what it means to you, how it has helped you etc etc It only needs to be a short piece and the deadline is May 1st so you have a couple of months to gather your thoughts!

Obviously you are welcome to submit a photograph too if you want, the more the merrier!

Thank-you in advance for your contributions to this project.

Your BT Buddy,

Natalya

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