Poppy - Diagnosed 2004 with an Optic Chiasm Glioma

Poppy - Diagnosed 2004 with an Optic Chiasm Glioma

Poppy

Our beautiful daughter, Poppy, was diagnosed with a large Brain Tumour (Optic Chiasm Glioma) in March 2004, then aged 14 months. This was picked up at a routine eye appointment for a squint, where we found out that Poppy is actually blind in her right eye. She had 8 hours of brain surgery 10 days after her diagnosis and, despite being given only a 50/50 chance of survival, Poppy made a remarkable recovery (home within 5 days!!). 60% of her tumour was removed, it was found to be low grade Malignant and a decision was made simply to brain scan every 3 months and observe her. Sadly, her next scan in May 2004 showed that all of her tumour had regrown, not an expected development at all. Poppy underwent a 6-hour operation in June, now leaving around 60% of the tumour remaining. We were advised that she would need time in intensive care, but in fact she was eating toast within an hour and home within 4 days!! A real little miracle!!


Poppy began Chemotherapy in June 2004. She was very ill initially, lots of infections and sickness, but in true Poppy-style she bounced back, and soon took it all in her stride!! She endured 17 months of chemotherapy (Carboplatin, Etoposide & Vincristin), with good shrinkage shown and only a small amount of 'stable' tumour remaining. Her tumour then stayed stable from October 2005 until January 2007, when slight growth became evident. In May 2007 Poppy underwent a 2-hour operation to drain the large cyst inside the tumour. Then, in January 2008, Poppy started another course of chemotherapy (Vinblastine). Sadly, this did not work & Poppy completed a 6-week course of Radiotherapy in July 2008. She is still smiling, is in top group at school, enjoys swimming & ballet lessons, bouncing around on her trampoline and making everyone around her laugh!


Currently, the only side effect that Poppy has from her tumour is the lost sight in her right eye. She is a very bright, chatty, active little girl who lives life to the full! We live day by day now, and are grateful for every moment we have with our beautiful daughter, who sparkles so much that she can light up a room full of people!! Poppy really is a little star!

To keep up to date with the latest news about Poppy and to find out about the charity her parents have set-up visit www.poppyfieldsappeal.co.uk

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