Support Groups

This page was last modified on 27th November 2011 at 01:59


Support groups come in all different shapes and sizes. support

Wiktionary describes a support group as "A group of nonprofessional people who support each other over a problem which all members share".

Below are some of the groups we have come across over the last few years that you might find helpful. We realise that not all groups are right for all people so we have included both face to face and online groups to give you more options.

If you know of a helpful group not listed below please contact us and we'll check it out before adding it to our list.

UK Online Support Groups - List of online support groups for patients, families and carers in the UK:

GROUP NAME
DESCRIPTION
Website Address / Contact Details
BT Buddies Forum Our online forum is a great place to discuss, ask questions, find support and share your experiences of living with a Brain Tumour.

BT Buddies Forum

BTUK
BTUK is a self-help news and discussion group for patients, carers and others affected by a brain tumour.
No more than 5 messages should be posted by one person per day. All messages that do not contain brain tumour related content must have the words "OFF TOPIC" in the subject line of each message.
http://health.groups.yahoo.com/group/btuk/

UK Support Groups - List of support groups for patients and carers around the UK:

NAME / LOCATION
DESCRIPTION
Contact Details

Belfast

Samuel Irwin Lecture Theatre, Level 1,

Royal Victoria Hospital, Belfast

Monthly

2nd Wednesday of each month, except Jul, Aug, Dec.

7.30pm-9.30pm

Run by Brainwaves - 0289 337 2505

Key co-ordinator: Kate Ferguson

Birmingham

The Health Exchange Meeting Room,

Fifth Floor, Birmingham Central Library

Monthly

Third Friday of every month.

10am - 12 noon

Contact Ann Atkins - 0121 745 3812 or 0781 8417601

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Or

Contact Sue Watson Jones - 0121 608 2741

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Bristol

St Peter’s Hospice,
Brentry,

Bristol

Monthly

3rd Thursday of each month

7.30pm to 9.00pm

Group doesn't meet in August.

Run by Hammer Out, contact Anne Coles - 0845 450 1039

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Or

Toni Lawton, Neuro-Oncology Clinical Nurse Specialist - 01179 753723

Cambridge Regional Brain Tumour Support Group

The Mary Wallace Centre,
7 Red Cross Lane,
Cambridge

For brain tumour patients and carers. Meets last Tues of each month. Close to Addenbrooke’s Hospital

Run by Ella Pybus, Brain Tumour UK Trustee.

Telephone Ella on 01787 374 084

This e-mail address is being protected from spambots. You need JavaScript enabled to view it

www.braintumourukeast.co.uk

Cheltenham

Sue Ryder Hospice

Church Road,

Leckhamptom, Cheltenham

Monthly

Meets fourth Thursday every month (except August)

7.30pm - 9pm

Run by Hammer Out, contact Anne Coles - 0845 450 1039

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Or

Toni Lawton, Neuro-Oncology Clinical Nurse Specialist - 01179 753723

Cork

Cork University Hospital

Monthly

Contact Avril O'Sullivan - Patient support services administrator, Irish Cancer Society

Telephone: +353 1 2310533

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.cancer.ie

Coventry

Social Club, Walsgrave Hospital,
Clifford Bridge Road,
Coventry
Monthly, open to all patients diagnosed with a brain tumour, and families, friends.

Ian Edwards

02476 965 326

Brain Tumour Support Group for Cumbria
Harraby Community Centre
67 Ridley Road,
Cotehill,
Carlisle, CA2 4LD

For patients, carers and families affected by brain tumours; meetings held monthly.

Wendy Bell: 01228 514855
Doncaster Meet every third Wednesday in the month Run by Brain Tumour UK supporter, Gail Swindell. Contact Brain Tumour UK on 0845 450 0386 for more info.

Dublin

St Lukes Hospital, Dublin

Monthly on 2nd Wednesday at 7.30pm

Contact Avril O'Sullivan - Patient support services administrator, Irish Cancer Society

Telephone: +353 1 2310533

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.cancer.ie

Edinburgh

Maggie’s Centre

Western General Hospital

Monthly

1st Tuesday at 7pm

No meetings in Jan or Jul

Alice MacGregor

0131 334 3609
Exeter
Force Cancer Support Centre
Corner House
Barrack Road
Exeter
EX2 5DW

The group is open to anyone who has been affected by a brain tumour, whether you are a patient, a family member, a friend or a Carer.

Monthly meetings are on 1st Friday of the month (except August) 2.00pm - 3.30pm

Further details are available from:
Anne Coles from Hammerout: 0845 450 1039
Robert Oliver: 01392 406151

Fife

Maggie's Centre,

Victoria Hospital, Kirkcaldy

First Tuesday of the month 7-9pm Contact - 01592 647997

Galway

University Hospital Galway

Contact Avril O'Sullivan - Patient support services administrator, Irish Cancer Society

Telephone: +353 1 2310533

email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Website: www.cancer.ie

Glasgow

The PRTC West Glasgow Carers Centre, Anniesland Cross, 1561 Great Western Road. Glasgow

Monthly

2nd Monday from 7pm to 9pm

Sheena Muir

0141 942 4475

Gloucestershire

The Day Unit
Sue Ryder Care
Leckhampton Court Hospice
Church Road
Leckhampton
GL53 0QJ

The group is open to anyone who has been affected by a brain tumour,
whether you are a patient, a family member, a friend or a carer.

Meetings held on the fourth Thursday of each month
(except August)
From 7.30pm to 9.00pm

Further details are available from the Hammer Out Office

Guildford

The Fountain Centre, St Lukes Centre,

Royal Surrey Hospital,

Egerton Road, Guildford

GU2 7XX

Monthly

Second Tuesday from 12 noon to 3pm

Contact Anne Wittle - 01252 834784

Haywards Heath, Sussex

2nd Tuesday of the month in Haywards Heath from 7pm - 9pm


Contact Charlotte Tripp 01273 412519 or Jill Collins 01444 243492

email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Hertfordshire Kathy Stakounis, a Brain Tumour UK supporter, is running a group in Hertfordshire. Contact Kathy on 01442 871 012

Leeds

Central Leeds location

Patient & Carer Brain Tumour Support Group

Monthly, first Tuesday in the month 6.30 to 8.30

Contact Carol Robertson 01943 870770 for more details

Leicester

Brainwaves
Helen Webb House
35 Westleigh Road
Leicester
LE3 0HH
Monthly, 1st Thursday from 2pm - 4pm

Coping with cancer 01162 230055

Or

Audrey Hopwood 07534 227963


Merseyside, Cheshire and North Wales

The Neurosupport Centre,
Norton Street,
Liverpool
L3 8LR

www.btbuddies.org.uk/Liverpool

Held at the NeuroSupport Centre in Liverpool on the first Monday of every month.

Run by BT Buddies in partnership with The Walton Centre and Brain Tumour UK.

Further information can be found here.

Contact: Tony Murphy, Patient Advice and Liaison Officer

Tel: 0151 529 6100

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it



London

St Thomas Hospital,
Richard Dimbleby Centre,
2nd Floor,
Lambeth Palace Road,

London
Monthly
First Monday 1.30pm – 3 pm

Contact Barbara - 0207 188 5918
London
London Friend
86 Caledonian Road
LONDON
N1 9DN
Monthly
First Monday of the month 7pm to 9pm.
GMAC: offering emotional support and information for gay/bisexual men affected by cancer.

Run by Jose Veiga, Chair, London Friend, a charity supporting the LGBT community
020 7833 1674

Middlesborough


Department of Neurosciences,
The James Cook University Hospital,
Marton Road,
Middlesborough, North Yorkshire,
TS4 3BW

1st Tues each month

6pm to 7.30pm

Run by Brain Tumour Action

Gill Hendry, 01642 854 347

Norwich

The Big C Cancer Centre (entrance of Norfolk & Norwich University Hospital)
First Wed each month from 2pm to 4pm

Run by Brain Tumour UK.

Telephone Ella Pybus on 01787 374 084

This e-mail address is being protected from spambots. You need JavaScript enabled to view it

www.braintumourukeast.co.uk

Oxford

5 Abingdon Road

Didcot, OX11 9BI

For children with a brain or spinal tumour and their families

Run by Oscar

www.support-oscar.org

01235 816310

Shrewsbury

Radbrook Community Centre, Bank Farm Road, Radbrook Green, Shrewsbury

Self Help Group for patients, relatives & carers, providing hope and inspiration to local people who are touched by Brain Tumours. Meetings are held 2nd Friday each month at 1 pm.

Contact Roderick Marsden on 0845 219 8107
Southampton
The Macmillan Centre
Southampton General Hospital
Tremona Road
Southampton
SO16 6YD
The group is open to anyone who has been affected by a brain tumour, whether you are a patient, a family member, a friend or a carer.
Monthly meetings are on 2nd Wednesday of the month (except August) 2.00pm - 3.30pm
Further details are available from:
Anne Coles from Hammerout: 0845 450 1039
The Macmillan Centre Manager: 02380 796503

Sutton, Surrey

Royal Marsden NHS Trust
Downs Road
Sutton

Carers’ group: OPD waiting area

Patients’ group: Richard Wells Rehab Centre

Monthly on 3rd Thursday from 7.30pm to 9pm.

Two support groups: one for carers and one for those diagnosed with a brain tumour


For the patients’ group, contact Helen White on 020 8661 3038

Tamworth

Colton Centre

Comberford Road, Tamworth, B79 9AA

Monthly

First Monday of every month from 11am to 1pm

The meetings will be confidential and parents can share their stories, talk and listen to each other and support one another.

Poppy Fields Special Mummies and Daddies.

Call Lisa Guilder on 07830 302622 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Worcestershire Brain Tumour Support Group

St Richard's Hospice Foundation, Wildwood Drive, Worcester, WR5 2LG

For directions visit - www.wbtsg.org

Meetings alternate between structured sessions held the first Friday of the month at 10.30 – 12.30 at St. Richards, Worcester and social events held in the evening or at weekends of the following month.

Details of dates and times can be found on the Events Page.

TELEPHONE: 0780 4820351

If a message is left we will aim to reply within 24 hours. If you do not get a reply please try again

EMAIL: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Or by POST:

Holly Cottage
Swansbrook Lane
Feckenham
Redditch
B96 6QB


Worldwide Online Support Groups - List of groups from around the world that UK patients, families and caregivers may find useful:

GROUP NAME DESCRIPTION Website Address / Contact Details
Brain - Temozolomide Group This group was started in 1999 for patients / caregivers / doctors interested in the drug Temozolomide for brain tumours. The group is now used to discuss many different medical issues associated with dealing with brain tumours, including Glioblastoma Multiforme (GBM), anaplastic astrocytomas (AA), oligodendroglioma and others. This group is run by the Musella Foundation. CLICK HERE to visit the group
Brain Tumour Community Group A place for people who are joined by the common thread of having a brain tumour, or caring for a person with a brain tumour, can share discussions of just about anything that is NOT medically related! THIS IS AN ADULTS ONLY GROUP. Run by the Musella Foundation.


Spinal GBM Group This list is for doctors, patients, caregivers, friend and anyone else interested in a special type of tumour called a spinal glioblastoma multiforme (GBM

CLICK HERE to visit this group

Brain Tumour Virtual Trial Group For people who are participating in our brain tumour virtual trial. Run by the Musella Foundation

CLICK HERE to register with this group

Ruta 6

This is a support group for those who are interested in, or currently using The Banerji Protocol (PDF file) for the treatment of brain tumours. Please join to learn general information about the treatment and feel free to share your personal stories. The Musella Foundation is currently running a virtual trial using this protocol. To participate, join the brain tumour virtual trial.

CLICK HERE to visit this group

Brain Surgery Group The purpose of this group is to educate patients, families and medical professionals and to improve the quality of medical care/follow-up and increase knowledge and awareness.

CLICK HERE to visit this group

Paediatric Brain Tumours This list is for the discussion of all paediatric brain tumours, primarily by parents and immediate family. However, all medical professionals both involved in the diagnosis and treatment are welcome. We deal with the tough stuff head on. We laugh, we cry, we argue and vent together as we search for answers. For the protection of members, short bio (a little bit about you and your interest in the group) will be requested after submitting your membership request and before we provide full access.

CLICK HERE to visit this group

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